Hyperthyroid And Hypothyroid What Your Doctor Doesn't Tell You A Simple Guide
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A thyroid problem is one of those illness’s that hardly anybody thinks about until they find themselves suffering from it. You never see it talked about on TV, and magazines never mention it. In fact, if you are anything like me, I only knew about thyroid problems when someone was talking about not being able to lose weight. So, because of this explanation I presumed that it was a simple thing, easy to control and once the tablets had kicked it, forgotten about.
I couldn't have been more wrong. I discovered that suffering from an over active thyroid was hell. And eventually when the doctors gave me tablets to control it, the side effects of the tablets, along with the too easy way of it becoming under active, was even worse.
Take it from me. Being diagnosed with a thyroid problem is not easy. In fact it can take over a year to get your body balanced and back to normal again, and even then it is something that you have to keep your eye on every day.
So what are the symptoms of an over active and under active Thyroid?
An overactive thyroid can start to show up in quite a few ways. In fact you may feel really healthy as it can speed up your motor functions and make you rush around feeling full of energy. The trouble starts when you notice that you have lost a lot of weight, your eyes seem to be more staring, and your hands start to shake.
This is caused by the thyroid gland in your neck producing too much of the thyroid hormone. It is a bit like the fight and flight stimulation caused by stress. And the really bad thing about it, is that it can cause your heart to work too fast, pumping the blood around your system.
When I was diagnosed with Graves Disease, another word for Hyperthyroid, I was told in no uncertain terms too, go home, sit down and don’t move until the tablets that my Doctor was going to give me, had kicked in. Why? Because if I had an accident, and needed surgery, it could kill me! Not such and easy going illness is it now?
Symptoms of Low Thyroid
- Sluggishness
- Weight gain
- Stomach problems
- Slow or stopped menstruation
- Depression ( A lot of depression is mis diagnosed, when really it is a thyroid problem)
- Slow thought process
- Can't focus properly with your eyes
- Dangerous to drive as your mental process doesn't work properly
- Panic attacks
- Poor sleep and nightmares
- Skin problems such as lack of elasticity.
- Very low thyroid can cause pockets of water to form on your face and body.
Symptoms of Over Active Thyroid
- Weight Loss
- Fast Heartbeat
- Shaking of the hands and poor elasticity of the skin on your hands and arms
- Out of breath
- Stomach problems
- Over active brain, can't sleep.
- Panic attacks.
- Goitre (Swelling in the neck)
- Very heavy menstruation
- Aching bones and muscles
- Bad eyesight such as dizzyness and after glow. Imagine a camera that has taken a picture of someone holding a torch. The glow from the torch spreads across the photo. This is similar to what happens when you look at something.
- Night sweats and sleep paralysis, very bad I might add.
Thyroid Eye Disease
Thyroid eye disease is another side effect. Eyes will look puffy or strange, and your eyesight starts to suffer. You will also get watery eyes, and pain. Not everybody will get this, but it is very common. Any thyroid problem is an auto immune disease. This means that your body is attacking itself. Thats why its better to have a low thyroid than a high one.
Diagnosis and Pain
When you have been diagnosed, there are a number of different options for you to take. Tablets, radioactive tablet, and surgery. All depending on how bad your symptoms are. Your Doctor will find the best one for you.
What the Doctors do not tell you.
Now we get to the part that is really important. And trust me when I say that I have tried and tested all these! Not deliberately you understand, but by way of pain, trial and error.
For a start, lets take a look at the tablets.
You may think that the Doctor will always give you the right medication. You have to remember that they probably have never had a thyroid problem so they are just doing it by the book.
But everybody is different. I was given a set of tablets called Carbamazole. To start with they were fine and my hyperthyroidism started to go down nicely. What I didn’t realise was the effect that they would have on me. I started to feel pain in my arms. In fact it got so bad that I couldn’t move them without yelling in agony.
Then it spread to my legs and back. The only way I can describe it is, imagine laying down on the road and letting a car run you over! Then being left to walk home. Yes, it was that bad. Every time I moved my arms, legs and back, it was excruciating. The strange, and very disturbing thing was, I called the doctor, and they gave me pain killers, not knowing why I was suffering like this.
I was admitted to hospital twice, and the doctor thought I had arthritis! In other words, nobody knew what was wrong. So I did the only thing that I could think off. I bought a book about my illness.
That was the best thing I could have done. It turned out that I was allergic to Carbamazole, and when I told the Doctor, he sat there, looked through his medical book and decided to change my tablets! I actually told him the ones that I wanted, and after that the pain went away!
Learn About The Disease
The second that you are diagnosed with Thyroid disease, make sure you get a good book about your illness.
Do not take it for granted that the doctor knows about thyroid illness. They may have training, but they do not know how it feels. Apart from that, a thyroid illness has many symptoms. Some very subtle, others more obvious.
A doctor will learn the basics, and know what to look out for, but everybody is different. Its one of those illnesses that has so many side effects and different aches and pains. Unless you suffer from it, you will not know. Its not something that can be learned.
I discovered that hyperthyroidism is a very different illness. I was literally in the dark, and the annoying thing about it was that the Doctors had no idea. You have to keep an eye on it yourself. Simple as that.
Take Charge
If you are told that you may have to have the radiation tablet, make sure that you ask as many questions as you need to know. Its your body. Don’t just go in there, take the tablet and go home. You choose. If you would rather carry on with the tablets, or have surgery, let them know. Taking a radioactive Iodine tablet can make some people sick, and you must keep away from babies and small children for at least two weeks. Saying that, its not strong enough to cause you any problems. It has been used for years. But you must be careful hugging people and staying near them for a few days.
That’s where the book comes in handy. The Internet is good for information, but the trouble is that you have to keep clicking on different sites to find exactly what info you are looking for. If you buy a book, then its there for you, all you have to do is flick through the chapters. Take this illness into your own hands. Its not only good for your health, but mentally you will feel a whole lot better if you know exactly how you are going to feel.
Hypothyroid can be frightening
On the other end of the scale, hypothyroidism is when you haven’t got enough hormone in your body. According to Doctors this is much easier to control and sort out than if its too high. that’s all very well, but once again, doctors do not know how you personally feel. A low thyroid can be a very scary thing.
Why? Because bluntly speaking, it can make you feel like an idiot. Harsh? Sorry but it’s the truth. A low thyroid is frightening because unless you have someone who knows how to recognise the state you are in, then basically you can go down hill fast. I don’t mean to frighten you, but it’s the truth.
Mental Confusion
According to the book that I read on the subject, a few years ago a young girl kept going to the doctor because she said she was ill. He diagnosed depression and gave her tablets. The situation got worse, but the doctor still said it was depression, and never looked for anything else. The young girl ended up in a coma and nearly died because the doctor had misdiagnosed her! True story!
Why did that happen? Easy, the symptoms are very similar to depression. And the worse thing about it is, when your thyroid hormone is too low, you cannot think! Your brain feels woolly and numb. Even looking at something will take you ages to figure out, purely because your mind is working too slowly. Your eyes see, but your mind does not connect.
How the hell are you going to look after yourself if the doctors misdiagnosis you?! Trust me on this, it happened to me!
The reason why it happened in my case was that the stupid doctors knew it was too high, so they gave me tablets, and the radiation tablet, and sent me home. Not one of them said come back in a month.
So, without thinking, I carried on taking them. My face filled with water pockets, I couldn’t recognise myself as it was swollen, and my mind felt as thought it was full of wool. Eventually, luckily for me, I looked in a mirror and realised that something was wrong. Just that one little voice in my head saved me.
I went back to the doctors and he said, your thyroid is dangerously low! And quickly changed my tablets! The stupid doctors, the specialist and all of them put together never ever said anything about this! The fact is, they didn’t know! They presumed that I would figure it out! How the hell could I figure it out when I couldn’t think?
So please, please get a book, read all about the symptoms, what happens when you are too high, check to make sure you are not to low and so on.
Do it before your mind decides to pack up on you. Trust me, nobody else will help.
And before you say, well, my friends will tell me. Or my partner will see.
NO! two points on this one.
First, friends are too polite to say, hey, you look ill, anorexic, shaky etc
And secondly, your partner will just not notice! True! Its such a subtle thing, its very hard to spot.
Did You Know?
There are many Celebs that suffer with Thyroid problems, these include:
Rod Stewart
Oprah Winfrey
Kelly Osbourne
Kim Cattrall
Linda Ronstadt
Missy Elliott
And Many More
Buy From Ebay
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NEW The Everything Thyroid Diet Book - Schneider, Clara
Current Bid: $10.32
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Thyroid For Dummies, Alan L. Rubin MD, New Book
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Thyroid For Dummies, Alan L. Rubin MD, Acceptable Book
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Make A List And Stick It On The Wall
So to end, take note of the list below, and if you find yourself in this situation and have been diagnosed with Thyroid disease, make sure you;
1. See a Doctor.
2. Make sure you buy a book on subject.
3. Change your tablets the second you feel ill or in pain.
4. Keep nagging and phoning the specialist, he is the only one who can help. GPs are useless!
5. Keep looking in the mirror. If your face gets skinny, fat or filled with watery sacks, get down the doctors fast.
6. Check your hands for the shakes, its one of the best signs of over activity.
7. Check your heartbeat sitting down, running, and then sitting again, to see if it beats too fast, or changes normally.
8. If you suddenly find that you are staring into space a lot, or sitting around without thinking, take more thyroxin and get to the doctors, your thyroid is too low.
9. If your eyes start to get wobbly vision, get checked out again, some of the symptoms can either be too high or too low, they do overlap. Symptoms can feel scarily similar, so you may not know if you are too high or too low. Do not diagnose yourself.
And last but not least.
10. WHENEVER YOU GO TO THE DOCTORS WITH ANY OF THE ABOVE SYMPTOMS, MAKE SURE YOU HAVE A BLOOD TEST. NEVER EVER LET THE DOCTOR GIVE YOU MEDICATION FOR DEPRESSION WITHOUT CHECKING TO SEE IF ITS YOUR THYROID THAT IS CAUSING YOUR ILLNESS.
A MISTAKE LIKE THAT CAN KILL YOU!
Links
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This has been a very informative, helpful hub for me. I have hypothyroid and have had for years. The last few years my doctor has been guessing at the dosage of my meds because I can't afford the required test. I am experiencing many of the symptoms you describe here and didn't know what was causing them.
This is very comprehensive, well researched, well written, and so helpful to me. I'm sure it will be to lots of other people, too. I just want to say how much I appreciate the work you put in getting all this information together in one place.
Voting you UP and useful, etc.
Hi Nell, I know someone who has an under-active thyroid and it a lot of problems for her. I have never experienced it first hand but I do have a better understanding of it now.
Wow, I didn't know these problems could be so severe. A lot of these symptoms look like they can mimic menopausal symptoms also. I wish doctors would approach women's health more cautiously before throwing pills at them. I am sorry you went through so much pain but this caveat may help many. Great article!
This is very informative; my sister has got those symptoms but she just shrugs off and attribute these to "getting old" symptoms. I will call her after this and urge her to get the book and find a specialist. Her eyes are bulging and her eye bags are exaggeratedly saggy, among others.
Thank you for sharing.
Hi Nell,
You have provided a great service by publishing this hub.
It is essential that we take control of our own health.
Doctors don't care. Well, maybe some do but many just write prescriptions. Pushers for the drug companies as far as I am concerned.
Voted up and awesome.
I wish you all the best for 2012.
I am so glad I read this. I have been told I had LOW thyroid all my life, but it was "within norms". Lately my eyes are so swollen, they swell shut. Thank you, love, I'll look into it again. Happy New Year Nell!Love, lily
Nell, excellent hub! We have a number of thyroid diseases that run in my family, most common is Graves Disease (characterized by hyperthyroidism). My sister had a miscarriage before figuring out that she had the disease. Very helpful and rated up across the board. Cheers, Steph
Oh Nell, what a timely subject for the New Year...What a tale you have told, scary, but oh so true. Hopefully others will Benefit from reading your Hub. Very, Very Educational, thank you!
A very well presented and informed hub so here's another up up and away.
Take care Nell and enjoy your day.
Eddy.
I didn't know thyroid related problems were that serious. I will bookmark this article and use it as a reference; Good Article
Informative hub Nell. About 10 years ago I was very run down, tired, thinning hair and eyebrows plus weight gain. Went to Dr. and was diagnosed with low thyroid. Once I started medication I soon began to feel and look better. I have it checked every six months to see if the level is correct. The thyroid is a tricky gland and women should definitely have it checked.
Excellent hub, Nell. We can often not know about, or become confused over the difference between, hypo versus hyper thyroid, and too many physicians are as dumb as doorknobs about these conditions. I am so sorry to hear you had such a frightening exprience, but am also relieved that you are okay. This is an informative article that should be ready and shared by many.
Wentt to my dr an said my thyroid levels was fine but I find myself in your shoes about feeling dumb. Usually can carry a great conversation but now I am having problems thinking of what things are. Like even shoes or socks for the children. My memory seems to be lacking, even forget where I am going as I am driving. What else does my dr need to do to find out what the cause for this problem? Melissa bryant mcdonald
I got lots of good information here but what stood out for me was your saying, "A doctor will learn the basics, and know what to look out for, but everybody is different." It's so important for a doctor to take your whole history into consideration and know what foods you are sensitive to as well. The holistic approach is so smart. Drugs can cure symtoms quickly, but unfortunately pharmaceuticals are often plagued with side effects.
I am so sorry to read about the agony you must have been through. My doctor once treated me for underactive thyroids and then she said there was nothing wrong with me. She never gave me any tablets. I wonder whether there is something wrong with her. hahahaha
Nell, I most properly have to say good bye to you because every one of my hub is mark substandard all over sudden. I can't get any hub up. I write to them but no answer just these automatic notices. At the end my hub will be getting so low that they cancel my account anyway. I still hope it doesn't come to it.
Thank you, Nel, for your kind words. I have done it before when it started but never got an answer. There are quite a number of peole who had the same and they wrote about it but never heard of them again. Guess they just left. I am sure I am not that bad. However, I will do it again.
Oh no, they are taking off now one by one old hubs off the Internet. Even where Google already visited and all the others. I can't even take them off and put them on Microsoft because it has a grammar check and I could correct them. Why doesn't Hubpages put a grammar check in?
I was hypothyroid for years and was victum to being prescribed antidepressants or told your thyroid is within normal range. That range is such bs. It took years of research and trial by error to get the right treatment. And those synthetic drugs like synthroid only make you sicker. I can't believe how this is so misdiagnosed....
This was a very good hub thanks for posting.
That is really great Nell...Thanks for that
Hello, Nell, and thank you for giving this great tip. I did use the spellcheck every time but they say it is my grammar. Any good tip for a free or cheap grammar check?
Good advice. Thank you.
Oh, nell, you don't how good it does when there is somebody to help. The hubs are blocked so noboyd can go near them but me. I just done a few and hopefully the great HP will accept it. You wouldn't believe it at one of my hub there was not only substandard but also the watermark and pixielated picture and now sit tight because here comes the laugh. I never had any pictures on that hub.
I want to thank you for this hub. My 14 year old son who has Down syndrome was just diagnosed with hyperthyroidism and we are going to see an endocrinologist next week. He cannot tell us the things you covered in here about pain or confusion so it is good to know these things. Voting way up!
Very informative, voted up! As a massage therapist I tend to look at the body from a preventative point of view. I don't have much respect for most doctors. Especially the ones that spend 2 minutes with you and then whip out their prescription pad. A prescription is a band-aid and in the case of thyroid medication it is necessary, but pain pills when you're allergic to the medication. I'll just add that one to my long list of prescription errors. The irony is that when I started college my major was pre-pharmacy. Thanks for combining a wealth of information with your personal experience.
This is really good and wow you are right about doctors, you have to almost know what is wrong with you when you go! My last visit I thought I was having thyroid problems because I hurt in my glands and ears and they did not give me blood work but ordered an x-ray on my jawbone and gave me prescriptions for Ibuprofen which I cannot take (raises my blood pressure) and a muscle relaxant which I would not take. I don't like starting treatments before I know the problem! So anyway I go back Tues to see what the x-ray told them and I think I will insist on a thyroid test although I am not having the symptoms you spoke of. We are never going to get out of this world alive, that's for sure, are we?
Thanks, Nell I will tell them a specialist in England told me so. It really could be that, thanks.
I love your advice about the doc visits and getting a good book to learn. Excellent hub.
This is important information to know. I think a lot of people have thyroid problems but just don't know. I think the blood panel workup my doctor does annually does check for thyroid problems though. Anytime you have any kind of medical problem, it is helpful to do the research and learn all you can about it. The doctor doesn't know most of the time, and even if she did, she wouldn't have the time to tell you all you need to know in an office visit.
It turns out that my son has the antibodies for Graves disease and for Hasimotos and that he is currently in remission. That means that we will have to watch his blood work every month until it goes one way or the other. The doctor said that she is hopeful it will show itself back as hypothyroid since it will be easier to treat.
I'm a little fearful now, my two year old daughter's blood results came back with high TSH but normal T3, the doctor wants to run another test in two months. I'm really hoping it's nothing and her TSH level goes back to normal.
I was thinking though, that I wished the doctor would have pointed out other causes of high TSH instead of focusing on hypothyroidism as the main cause.....I'm sure my daughter will be fine. Thanks for the info though.
Wow Nell! I'm glad I found this hub. I have thyroid disease and I can attest that everyting you have written in this hub is TRUE, TRUE, TRUE. I have blood tests taken every three months just to keep a check on my thyroid. It can ruin your eyesight and I have suffered from hypertyroidism in my youth and hypothyroidism in my middle years. I am constantly going to the doctor to have my thyroid medicine (I take synthroid) adjusted. As soon as my eyesight becomes blurry, I know I need it adjusted! It is the most difficult disease to keep a handle on and I sympathize and empathize with you Nell. And, yes, I've had my wooly, fuzzy brain moments, also.
Hi Nell! I have been sick basically my entire life, and am now wondering if it's a thyroid problem. I had febrile seizures and really bad colic as a baby, and once I hit age 9 even more problems hit. I began having dizzy spells and a lot of GI issues. They told me it was stress, (at age 9, yeah right!) Fast forward to age 15, it was only getting worse. I had to leave public school and begin online schooling because I was so nauseous and sick every day. The doctors couldn't figure out what was going on and once again looked at me and said it was in my head and questioned me about my weight. I've always been naturally skinny no matter what I eat, which runs in my family. Anyway, it got better for a little while again, but I would always randomly have really bad stomach bloating and pain/gas. I am now 18 and this year has been hell. Around Christmas I got sick and threw up for the first time in a couple years. After that I had nausea every single day and couldn't even leave my house. I felt so weak and had no energy. I went to the emergency room on February 15th and my heart rate was high, but they just said I was dehydrated despite me telling them all about the history of my health. They have tested my thyroid once I believe, but never re-tested. Now they have tried to give me depression meds, antacids, etc. but my mom and I knew none of that would help. We finally got my doctor to order a CT scan, and I got the results back last week. They saw trapped air which they say is the cause of my stomach discomfort. I have one cyst on my ovary which is 4 cm. in size but they weren't worried about that in the slightest. I have terrible mood swings, what feel like hot flashes, brain fog, weak muscles and joints, shortness of breath at times, and I barely ever get my period. Sorry for my rambling, but I don't know where to turn anymore and so have been frantically searching the internet for answers! Thank you for your post, I am going to try to see an Endocrinologist as soon as I can!





































alphagirl Level 5 Commenter 4 months ago
Wow! Sorry to hear your experience. My sister had hyper-thyroid. She had the bulging eye. She takes synthroid with no problems. Hope you get back on track. I agree with you. Doctors do not know it all. the drug reps push their meds on the doctors so that they write scripts...it s is all about making money for the drug companies. East dandelion salads to strengthen your liver. I get the feeling you absorb things quickly. fabulous hub!